Best Practice & Research Clinical Rheumatology
Volume 20, Issue 2 , Pages 301-314 , April 2006

Management of adherence and chronic rheumatic disease in children and adolescents

  • Michael A. Rapoff, PhD (Ralph L. Smith Professor of Pediatrics, and Chief, Behavioral Pediatrics)

      Affiliations

    • Corresponding Author InformationTel.: +1 913 588 6373; fax: +1 913 588 2252.

References 

  1. Rapoff MA. Adherence to Pediatric Medical Regimens. New York: Kluwer/Plenum; 1999;
  2. Lutfey KE, Wishner WJ. Beyond ‘compliance’ if ‘adherence’. Diabetes Care. 1999;22:635–639
  3. World Health Organization. Adherence to long-term therapies: Evidence for action, Geneva, Switzerland; 2003. pp. 3–4.
  4. Adams CD, Dreyer ML, Dinakar C, Portnoy JM. Pediatric asthma: a look at adherence from the patient and family perspective. Current Allergy and Asthma Reports. 2004;4:425–432
  5. Litt IF, Cuskey WR. Compliance with salicylate therapy in adolescents with juvenile rheumatoid arthritis. American Journal of Diseases of Children. 1981;135:434–436
  6. Litt IF, Cuskey WR, Rosenberg A. Role of self-esteem and autonomy in determining medication compliance among adolescents with juvenile rheumatoid arthritis. Pediatrics. 1982;69:15–17
  7. Rapoff MA, Lindsley CB, Christophersen ER. Improving compliance with medical regimens: case study with juvenile rheumatoid arthritis. Archives of Physical Medicine and Rehabilitation. 1984;65:267–269
  8. Rapoff MA, Purviance MR, Lindsley CB. Improving medication compliance for juvenile rheumatoid arthritis and its effect on clinical outcome: a single-subject analysis. Arthritis Care and Research. 1988;1:12–16
  9. Rapoff MA, Purviance MR, Lindsley CB. Educational and behavioral strategies for improving medication compliance in juvenile rheumatoid arthritis. Archives of Physical Medicine and Rehabilitation. 1988;69:439–441
  10. Pieper KB, Rapoff MA, Purviance MR, Lindsley CB. Improving compliance with prednisone therapy in pediatric patients with rheumatic disease. Arthritis Care and Research. 1989;2:132–135
  11. Rapoff MA, Belmont JM, Lindsley CB, & Olson NY. Electronically monitored adherence to medications by newly diagnosed patients with juvenile rheumatoid arthritis. Arthritis Care And Research; in press.
  12. Rapoff MA, Lindsley CB, Christophersen ER. Parent perceptions of problems experienced by their children in complying with treatments for juvenile rheumatoid arthritis. Archives of Physical Medicine and Rehabilitation. 1985;66:427–430
  13. Hayford JR, Ross CK. Medical compliance in Juvenile rheumatoid arthritis: problems and perspectives. Arthritis Care and Research. 1988;1:190–197
  14. Cramer JA. Overview of methods to measure and enhance patient compliance. In:  Cramer JA,  Spilker B editor. Patient Compliance in Medical Practice and Clinical Trials. New York, NY: Raven Press; 1991;p. 3–10
  15. Backes JM, Schentag JJ. Partial compliance as a source of variance in pharmacokinetics and therapeutic drug monitoring. In:  Cramer JA,  Spilker B editor. Patient Compliance in Medical Practice and Clinical Trials. New York, NY: Raven Press; 1991;p. 27–36
  16. Bardare M, Cislaghi GU, Mandelli M, Sereni F. Value of monitoring plasma salicylate levels in treating juvenile rheumatoid arthritis: observations in 42 cases. Archives of Disease in Childhood. 1978;53:381–385
  17. Rapoff MA, Belmont JM, Lindsley CB, et al. Prevention of non-adherence to non-steroidal anti-inflammatory medications for newly diagnosed patients with juvenile rheumatoid arthritis. Health Psychology. 2002;21:620–623
  18. Riekert KA, Rand CS. Electronic monitoring of medication adherence: when is high-tech best?. Journal of Clinical Psychology in Medical Settings. 2002;9:25–34
  19. Finney JW, Hook RJ, Friman PC, et al. The overestimation of adherence to pediatric medical regimens. Child Health Care. 1993;22:297–304
  20. de Klerk E, van der Heijde D, van der Tempel H, van der Linden S. Development of a questionnaire to investigate patient compliance with antirheumatic drug therapy. The Journal of Rheumatology. 1999;26:2635–2641
  21. De Civita M, Dobkin PL, Ehrmann-Feldman D, et al. Development and preliminary reproducibility and validity of the parent adherence report questionnaire: a measure of adherence in juvenile idiopathic arthritis. Journal of Clinical Psychology in Medical Settings. 2005;12:1–12
  22. Rand CS. ‘I took my medicine like you told me, doctor’: self-report of adherence with medical regimens. In:  Stone AA,  Turkkan JS,  Bachrach CA,  Jobe JB,  Kurtzman HS,  Cain VS editor. The Science of Self-Report: Implications for Research and Practice. Mahwah, NJ: Lawrence Erlbaum; 2000;p. 257–276
  23. Chaney JM, Peterson L. Family variables and disease management in juvenile rheumatoid arthritis. Journal of Pediatric Psychology. 1989;14:389–403
  24. Kyngäs H. Motivation as a crucial predictor of good compliance in adolescents with rheumatoid arthritis. International Journal of Nursing Practice. 2002;8:336–341
  25. Rapoff MA. Compliance with treatment regimens for pediatric rheumatic diseases. Arthritis Care and Research. 1989;2:S40–S47
  26. Rapoff MA. Helping children follow their medical treatment program: guidelines for parents of children with rheumatic diseases, Available From the Author, University of Kansas Medical Center, Department of Pediatrics, 3901 Rainbow Blvd., Kansas City, KS 66160-7330, 1997.
  27. Singh G, Athreya BH, Fries JF, Goldsmith DP. Measurement of health status in children with juvenile rheumatoid arthritis. Arthritis and Rheumatism. 1994;37:1761–1769
  28. Kroll T, Barlow JH, Shaw K. Treatment adherence in juvenile rheumatoid arthritis: a review. Scandinavian Journal of Rheumatology. 1999;28:10–18
  29. Rapoff MA, Barnard MU. Compliance with pediatric medical regimens. In:  Cramer JA,  Spilker B editor. Patient Compliance in Medical Practice and Clinical Trials. New York, NY: Raven Press; 1991;p. 73–98
  30. Thompson SW, Dahlquist LM, Koenning GM, Bartholomew LK. Brief report: adherence-facilitating behaviors of a multidisciplinary pediatric rheumatology staff. Journal of Pediatric Psychology. 1995;20:291–297

PII: S1521-6942(05)00125-7

doi: 10.1016/j.berh.2005.11.002

Best Practice & Research Clinical Rheumatology
Volume 20, Issue 2 , Pages 301-314 , April 2006

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