Best Practice & Research Clinical Rheumatology
Volume 21, Issue 4 , Pages 629-636 , August 2007

Monitoring outcomes of arthritis and longitudinal data collection in routine care using a patient questionnaire that incorporates a clinical note on one piece of paper

  • Yusuf Yazici, MD (Assistant Professor of Medicine)

      Affiliations

    • Corresponding Author InformationTel.: +1 646 356 9400; Fax: +1 646 356 9453.

References 

  1. Pincus T, Sokka T. Should contemporary rheumatoid arthritis clinical trials be more like standard patient care and vice versa?. Annals of the Rheumatic Diseases. 2004;63(supplement II):ii32–ii39
  2. Sokka T, Pincus T. Eligibility of patients in routine care for major clinical trials of anti-TNF agents in rheumatoid arthritis. Arthritis and Rheumatism. 2003;48:313–318
  3. Sokka T, Pincus T. Most patients receiving routine care for rheumatoid arthritis in 2001 did not meet inclusion criteria of most recent clinical trials. The Journal of Rheumatology. 2003;30:1138–1146
  4. Gogus F, Yazici Y, Yazici H. Inclusion criteria as widely used for rheumatoid arthritis clinical trials: patient eligibility in a Turkish cohort. Clinical and Experimental Rheumatology. 2005;23:681–684
  5. Yazici Y, Kulman I. Majority of rheumatoid arthritis patients in routine care do not meet inclusion criteria for RA clinical trials. Annals of the Rheumatic Diseases. 2004;63(supplement 1):183
  6. Pincus T, Segurado OG. Most visits of most patients with rheumatopid arthritis to most rheumatologists do not include a formal quantitative joint count. Annals of the Rheumatic Diseases. 2006;65:820–822
  7. Pincus T, Sokka T. Quantitative measures for assessing rheumatoid arthritis in clinical trials and clinical care. Best Practice & Research. Clinical Rheumatology. 2003;17:753–781
  8. Wolfe F, Michaud K, Choi HK, Williams R. Annual and lifetime productivity costs and income losses in persons with rheumatoid arthritis. Arthritis and Rheumatism. 2003;48(supplement):S243
  9. Pincus T, Swearingen C, Wolfe F. Toward a Multidimensional Health Assessment Questionnaire: Assessment of advanced activities of daily living and psychological status in the patient friendly Health Assessment Questionnaire format. Arthritis and Rheumatism. 1999;42:2220–2230
  10. Wolfe F, Pincus T. Listening to the patient: A practical guide to self report questionnaires in clinical care. Arthritis and Rheumatism. 1999;42:1797–1808
  11. Pincus T, Wolfe F. Patient questionnaires for clinical research and improved standard patient care: Is it better to have 80% of the information in 100% of patients or 100% of the information in 5% of patients?. The Journal of Rheumatology. 2005;32:575–577
  12. Yazici Y. A database in private practice: the Brooklyn Outcomes of Arthritis Rheumatology Database (BOARD). Clinical and Experimental Rheumatology. 2005;23(supplement 39):S182–S187
  13. Pincus T, Yazici Y, Bergman M, et al. Simplified formats of visual analog scales for use in standard rheumatology clinical care: Agreement between 10 cm horizontal line and 21 numbered circles. Arthritis and Rheumatism. 2006;54(supplement):S345
  14. Pincus T, Bergman M, Yazici Y, et al. Time to score various formats of a multidimensional health assessment questionnaire (MDHAQ): Which format would be best for standard clinical care?. Arthritis and Rheumatism. 2006;54(supplement):S703
  15. Pincus T, Bergman M, Yazici Y, et al. Rheumatoid arthritis patient index data: Absolute indices of 2-5 core data set measures base don patient reported outcomes for use in standard clinical care: Performance in two abatacept trials. Arthritis and Rheumatism. 2006;54(supplement):S375
  16. Kishimoto M, Tokuda Y, Yazici Y. RAPID, a simple easy to use patient reported outcome index, is strongly correlated with DAS28 and CDAI indices when monitoring rheumatoid arthritis patients in routine care. Arthritis and Rheumatism. 2006;54(supplement):S350
  17. Pincus T, Brooks RH, Callahan LF. A proposed 30–45 minute 4 page standard protocol to evaluate rheumatoid arthritis (SPERA) that includes measures of inflammatory activity, joint damage, and longterm outcomes. The Journal of Rheumatology. 1999;26:473–480
  18. Pincus T, Yazici Y, Bergman M. Saving time and improving care with a multidimensional health assessment questionnaire: 10 practical considerations. The Journal of Rheumatology. 2006;33:448–454
  19. Callahan LF, Smith WJ, Pincus T. Self-report questionnaires in five rheumatic diseases: Comparisons of health status constructs and associations with formal education level. Arthritis Care and Research. 1989;2:122–131

PII: S1521-6942(07)00007-1

doi: 10.1016/j.berh.2007.02.002

Best Practice & Research Clinical Rheumatology
Volume 21, Issue 4 , Pages 629-636 , August 2007

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