Best Practice & Research Clinical Rheumatology
Volume 21, Issue 4 , Pages 733-753 , August 2007

Can a Multi-Dimensional Health Assessment Questionnaire (MDHAQ) and Routine Assessment of Patient Index Data (RAPID) scores be informative in patients with all rheumatic diseases?

  • Theodore Pincus, MD (Director of Outcomes Research)

      Affiliations

    • Corresponding Author InformationTel.: +1 615 936 2152; Fax: +1 615 936 2159.

References 

  1. Wolfe F, Michaud K. The clinical and research significance of the erythrocyte sedimentation rate. The Journal of Rheumatology. 1994;21:1227–1237
  2. Wolfe F, Pincus T. The level of inflammation in rheumatoid arthritis is determined early and remains stable over the longterm course of the illness. The Journal of Rheumatology. 2001;28(8):1817–1824
  3. Pincus T. Advantages and limitations of quantitative measures to assess rheumatoid arthritis: joint counts, radiographs, laboratory tests, and patient questionnaires. Bulletin of the Hospital for Joint Diseases. 2006;64:32–39
  4. Bellamy N, Buchanan WW, Goldsmith CH, et al. Validation study of WOMAC: A health status instrument for measuring clinically important patient relevant outcomes to antirheumatic drug therapy in patients with osteoarthritis of the hip or knee. The Journal of Rheumatology. 1988;15:1833–1840
  5. Burckhardt CS, Clark SR, Bennett RM. The fibromyalgia impact questionnaire: development and validation. The Journal of Rheumatology. 1991;18:728–733
  6. Calin A, Garrett S, Whitelock H, et al. A new approach to defining functional ability in ankylosing spondylitis: the development of the Bath Ankylosing Spondylitis Functional Index. The Journal of Rheumatology. 1994;21(12):2281–2285
  7. van Riel PLCM. Provisional guidelines for measuring disease activity in clinical trials on rheumatoid arthritis (Editorial). British Journal of Rheumatology. 1992;31:793–794
  8. Tugwell P, Boers M. OMERACT Committee. Proceedings of the OMERACT Conferences on outcome measures in rheumatoid arthritis clinical trials, Maastrict, Netherlands. The Journal of Rheumatology. 1993;20:527–591
  9. Felson DT, Anderson JJ, Boers M, et al. The American College of Rheumatology preliminary core set of disease activity measures for rheumatoid arthritis clinical trials. Arthritis and Rheumatism. 1993;36:729–740
  10. van der Heijde DMFM, van't Hof M, van Riel PLCM, van de Putte LBA. Development of a disease activity score based on judgment in clinical practice by rheumatologists. The Journal of Rheumatology. 1993;20:579–581
  11. Prevoo MLL, van't Hof MA, Kuper HH, et al. Modified disease activity scores that include twenty-eight-joint counts: Development and validation in a prospective longitudinal study of patients with rheumatoid arthritis. Arthritis and Rheumatism. 1995;38:44–48
  12. Hawker G, Gabriel S, Bombardier C, et al. A reliability study of SLEDAI: a disease activity index for systemic lupus erythematosus. The Journal of Rheumatology. 1993;20:657–660
  13. Hay EM, Bacon PA, Gordon C, et al. The BILAG index: a reliable and valid instrument for measuring clinical disease activity in systemic lupus erythematosus. The Quarterly Journal of Medicine. 1993;86(7):447–458
  14. Swaak AJ, van den Brink HG, Smeenk RJ, et al. Systemic lupus erythematosus. Disease outcome in patients with a disease duration of at least 10 years: second evaluation. Lupus. 2001;10(1):51–58
  15. Petri M, Hellmann DB, Hochberg M. Validity and reliability of lupus activity measures in the routine clinic setting. The Journal of Rheumatology. 1992;19:53–59
  16. Mosca M, Bencivelli W, Vitali C, et al. The validity of the ECLAM index for the retrospective evaluation of disease activity in systemic lupus erythematosus. Lupus. 2000;9(6):445–450
  17. Bencivelli W, Vitali C, Isenberg DA, et al. Disease activity in systemic lupus erythematosus: report of the Consensus Study Group of the European Workshop for Rheumatology Research. III. Development of a computerised clinical chart and its application to the comparison of different indices of disease activity. The European Consensus Study Group for Disease Activity in SLE. Clinical and Experimental Rheumatology. 1992;10(5):549–554
  18. Calin A, Nakache JP, Gueguen A, et al. Defining disease activity in ankylosing spondylitis: is a combination of variables (Bath Ankylosing Spondylitis Disease Activity Index) an appropriate instrument?. Rheumatology (Oxford). 1999;38(9):878–882
  19. Creemers MC, Franssen MJ, van't Hof MA, et al. Assessment of outcome in ankylosing spondylitis: an extended radiographic scoring system. Annals of the Rheumatic Diseases. 2005;64(1):127–129
  20. Jenkinson TR, Mallorie PA, Whitelock HC, et al. Defining spinal mobility in ankylosing spondylitis (AS): the Bath AS metrology index. The Journal of Rheumatology. 1994;21(9):1694–1698
  21. Dougados M, Gueguen A, Nakache JP, et al. Evaluation of a functional index and an articular index in ankylosing spondylitis. The Journal of Rheumatology. 1988;15:302–307
  22. Luqmani RA, Bacon PA, Moots RJ, et al. Birmingham Vasculitis Activity Score (BVAS) in systemic necrotizing vasculitis. The Quarterly Journal of Medicine. 1994;87:671–678
  23. Whiting O'Keefe QE, Stone JH, Hellmann DB. Validity of a vasculitis activity index for systemic necrotizing vasculitis. Arthritis and Rheumatism. 1999;42:2365–2371
  24. Stone JH, Hoffman GS, Merkel PA, et al. A disease-specific activity index for Wegener's granulomatosis: modification of the Birmingham Vasculitis Activity Score. Arthritis and Rheumatism. 2001;44:912–920
  25. Pincus T, Wolfe F. Patient questionnaires for clinical research and improved standard patient care: is it better to have 80% of the information in 100% of patients or 100% of the information in 5% of patients?. The Journal of Rheumatology. 2005;32:575–577
  26. Fries JF, Spitz P, Kraines RG, Holman HR. Measurement of patient outcome in arthritis. Arthritis and Rheumatism. 1980;23:137–145
  27. Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Medical Care. 1992;30:473–481
  28. Fries JF, Ramey DR. ‘Arthritis Specific’ global health analog scales assess ‘generic’ health related quality-of-life in patients with rheumatoid arthritis. The Journal of Rheumatology. 1997;24:1697–1702
  29. Hagen KB, Smedstad LM, Uhlig T, Kvien TK. The responsiveness of health status measures in patients with rheumatoid arthritis: Comparison of disease-specific and generic instruments. The Journal of Rheumatology. 1999;26:1474–1480
  30. Pincus T, Swearingen C, Wolfe F. Toward a multidimensional health assessment questionnaire (MDHAQ): Assessment of advanced activities of daily living and psychological status in the patient friendly health assessment questionnaire format. Arthritis and Rheumatism. 1999;42:2220–2230
  31. Pincus T, Sokka T, Kautiainen H. Further development of a physical function scale on a multidimensional health assessment questionnaire for standard care of patients with rheumatic diseases. The Journal of Rheumatology. 2005;32:1432–1439
  32. Callahan LF, Smith WJ, Pincus T. Self-report questionnaires in five rheumatic diseases: Comparisons of health status constructs and associations with formal education level. Arthritis Care and Research. 1989;2:122–131
  33. Brooks RH, Callahan LF, Pincus T. Use of self-report activities of daily living questionnaires in osteoarthritis. Arthritis Care and Research. 1988;1:23–32
  34. Pincus T, Koch GG, Sokka T, et al. A randomized, double-blind, crossover clinical trial of diclofenac plus misoprostol versus acetaminophen in patients with osteoarthritis of the hip or knee. Arthritis and Rheumatism. 2001;44:1587–1598
  35. Pincus T, Koch G, Lei H, et al. Patient preference for placebo, acetaminophen or celecoxib efficacy studies (PACES): two randomized placebo-controlled cross-over clinical trials in patients with osteoarthritis of the knee or hip. Annals of the Rheumatic Diseases. 2004;63:931–939
  36. DeWalt DA, Reed GW, Pincus T. Further clues to recognition of patients with fibromyalgia from a simple 2-page patient multidimensional health assessment questionnaire (MDHAQ). Clinical and Experimental Rheumatology. 2004;22:453–461
  37. Callahan LF, Pincus T. The P-VAS/D-ADL ratio: A clue from a self-report questionnaire to distinguish rheumatoid arthritis from noninflammatory diffuse musculoskeletal pain. Arthritis and Rheumatism. 1990;33:1317–1322
  38. Pincus T, Strand V, Koch G, et al. An index of the three core data set patient questionnaire measures distinguishes efficacy of active treatment from placebo as effectively as the American College of Rheumatology 20% response criteria (ACR20) or the disease activity score (DAS) in a rheumatoid arthritis clinical trial. Arthritis and Rheumatism. 2003;48(3):625–630
  39. Pincus T, Amara I, Koch GG. Continuous indices of Core Data Set measures in rheumatoid arthritis clinical trials: lower responses to placebo than seen with categorical responses with the American College of Rheumatology 20% criteria. Arthritis and Rheumatism. 2005;52:1031–1036
  40. Pincus T, Chung C, Segurado OG. An index of patient self-reported outcomes (PRO Index) discriminates effectively between active and control treatment in four clinical trials of adalimumab in rheumatoid arthritis. The Journal of Rheumatology. 2006;33:2146–2152
  41. Wells G, Li T, Maxwell L, et al. Sensitivity of measures of function and patient reported outcomes following treatment with abatacept in patients with rheumatoid arthritis. Arthritis and Rheumatism. 2005;52:S467
  42. Wolfe F, Michaud K, Pincus T. A composite disease activity scale for clinical practice, observational studies and clinical trials: the patient activity scale (PAS/PAS-II). The Journal of Rheumatology. 2005;32:2410–2415
  43. Pincus T, Gibofsky A, Weinblatt ME. Urgent care and tight control of rheumatoid arthritis as in diabetes and hypertension: better treatments but a shortage of rheumatologists. Arthritis and Rheumatism. 2002;46(4):851–854
  44. Pincus T, Wolfe F. An infrastructure of patient questionnaires at each rheumatology visit: Improving efficiency and documenting care. The Journal of Rheumatology. 2000;27:2727–2730
  45. Smith WJ, Callahan LF, Marcum SB, Pincus T. Analysis of dispositional optimism in relation to health status over a one-year period in rheumatoid arthritis (RA). Arthritis Care and Research. 1990;3:S10
  46. Pincus T, Callahan LF, Sale WG, et al. Severe functional declines, work disability, and increased mortality in seventy-five rheumatoid arthritis patients studied over nine years. Arthritis and Rheumatism. 1984;27:864–872
  47. Wolfe F, Cathey MA. The assessment and prediction of functional disability in rheumatoid arthritis. The Journal of Rheumatology. 1991;18:1298–1306
  48. Callahan LF, Bloch DA, Pincus T. Identification of work disability in rheumatoid arthritis: Physical, radiographic and laboratory variables do not add explanatory power to demographic and functional variables. Journal of Clinical Epidemiology. 1992;45:127–138
  49. Wolfe F, Hawley DJ. The longterm outcomes of rheumatoid arthritis: Work disability: A prospective 18 year study of 823 patients. The Journal of Rheumatology. 1998;25:2108–2117
  50. Sokka T, Kautiainen H, Möttönen T, Hannonen P. Work disability in rheumatoid arthritis 10 years after the diagnosis. The Journal of Rheumatology. 1999;26:1681–1685
  51. Lubeck DP, Spitz PW, Fries JF, et al. A multicenter study of annual health service utilization and costs in rheumatoid arthritis. Arthritis and Rheumatism. 1986;29:488–493
  52. Wolfe F, Zwillich SH. The long-term outcomes of rheumatoid arthritis: A 23-year prospective, longitudinal study of total joint replacement and its predictors in 1600 patients with rheumatoid arthritis. Arthritis and Rheumatism. 1998;41:1072–1082
  53. Wolfe F, Kleinheksel SM, Cathey MA, et al. The clinical value of the Stanford health assessment questionnaire functional disability Index in patients with rheumatoid arthritis. The Journal of Rheumatology. 1988;15:1480–1488
  54. Leigh JP, Fries JF. Mortality predictors among 263 patients with rheumatoid arthritis. The Journal of Rheumatology. 1991;18:1307–1312
  55. Pincus T, Brooks RH, Callahan LF. Prediction of long-term mortality in patients with rheumatoid arthritis according to simple questionnaire and joint count measures. Annals of Internal Medicine. 1994;120:26–34
  56. Callahan LF, Cordray DS, Wells G, Pincus T. Formal education and five-year mortality in rheumatoid arthritis: Mediation by helplessness scale scores. Arthritis Care and Research. 1996;9:463–472
  57. Callahan LF, Pincus T, Huston JW, et al. Measures of activity and damage in rheumatoid arthritis: Depiction of changes and prediction of mortality over five years. Arthritis Care and Research. 1997;10:381–394
  58. Söderlin MK, Nieminen P, Hakala M. Functional status predicts mortality in a community based rheumatoid arthritis population. The Journal of Rheumatology. 1998;25:1895–1899
  59. Sokka T, Hakkinen A, Krishnan E, Hannonen P. Similar prediction of mortality by the health assessment questionnaire in patients with rheumatoid arthritis and the general population. Annals of the Rheumatic Diseases. 2004;63:494–497
  60. Konstam V, Salem D, Pouleur H, et al. Baseline quality of life as a predictor of mortality and hospitalization in 5025 patients with congestive heart failure. The American Journal of Cardiology. 1996;78(8):890–895
  61. Cunningham WE, Crystal S, Bozzette S, Hays RD. The association of health-related quality of life with survival among persons with HIV infection in the United States. Journal of General Internal Medicine. 2005;20(1):21–27
  62. Covinsky KE, Palmer RM, Counsell SR, et al. Functional status before hospitalization in acutely III older adults: Validity and clinical importance of retrospective reports. Journal of the American Geriatrics Society. 2000;48:164–169

PII: S1521-6942(07)00022-8

doi: 10.1016/j.berh.2007.02.006

Best Practice & Research Clinical Rheumatology
Volume 21, Issue 4 , Pages 733-753 , August 2007

Article Tools

* Image Usage & Resolution