Best Practice & Research Clinical Rheumatology
Volume 21, Issue 5 , Pages 857-869 , October 2007

Qualitative assessments

  • Heidi Lempp, MSc, PhD, RN (Senior Qualitative Researcher)

      Affiliations

    • Corresponding Author InformationCorresponding author. Tel.: +44 207 848 5604; Fax: +44 207 848 5202.
  • ,
  • Gabrielle Kingsley, BSc, MBChB, PhD, FRCP (Reader in Rheumatology)

References 

  1. Mays M, Pope C. Qualitative research in health care. Assessing quality in quality research. British Medical Journal. 2000;320:50–52
  2. Silverman D. The quality of qualitative health research: the open – ended interview and its alternatives. Social Science in Health. 1998;4(2):104–118
  3. Harding G, Gantley M. Qualitative methods: beyond the cookbook. Family Practice. 1998;15(1):76–79
  4. Campbell C, Fitzpatrick R, Haines A, et al. Framework for design and evaluation of complex interventions to improve health. British Medical Journal. 2000;321:694–696
  5. Dixon-Woods M, Fitzpatrick R. Qualitative research in systematic reviews. British Medical Journal. 2001;323:765–766
  6. Lapsley P, Groves T. The patient journey: travelling through life with chronic illness. British Medical Journal. 2004;329:583–584
  7. Hewlett S, De Witt M, Richards P, et al. Patients and professionals as research partners: challenges, practicalities and benefits. Arthritis and Rheumatism (Arthritis Care & Research). 2006;55(4):676–680
  8. Thornicroft G, Rose D. Health service research: is there anything to learn from mental health?. Journal of Health Service Research Policy. 2005;10(1):1–2
  9. May C. Chronic illness and intractability: professional-patient interactions in primary care. Chronic Illness. 2005;1:15–20
  10. Thornicroft G, Tansella M. Growing recognition of the importance of service user involvement in mental health service planning and evaluation. Epidemiologica e Psichiatria Sociale. 2005;14(1):1–3
  11. Green J, Britten N. Qualitative research and evidence based medicine. British Medical Journal. 1998;316:1230–1232
  12. Goffman E. Asylums. Essays on the Social Situation of Mental Patients and their Inmates. Harmondsworth: Penguin Books Ltd; 1961;
  13. Glaser B, Strauss A. Awareness of Dying. New York: Aldine; 1965;
  14. Silverman D. Going private: ceremonial forms in a private oncology clinic. Sociology. 1984;18(2):191–204
  15. Rose D, Fleishmann P, Wykes T, et al. Patients' perspectives on electroconvulsive therapy: systematic review. British Medical Journal. 2003;326:1363
  16. Nettleton S. The sociology of health and illness. second edn.. Cambridge: Polity Press; 2006;
  17. McPherson KM, Brander P, Taylor WJ, McNaughton HK. Consequences of stroke, arthritis and chronic pain – are there important similarities?. Disability and Rehabilitation. 2004 Aug 19;26(16):988–999
  18. Brambleby P. Threats and opportunities of a patient-led National Health Service. British Journal of Homecare. 2006;1(2):4–5
  19. Scott DL, Smith C, Kingsley G. What are the consequences of early rheumatoid arthritis for the individual?. Best Practice and Research Clinical Rheumatology. 2005;19(1):117–136
  20. Ahlmen M, Nordenskioeld B, Archenholtz I, et al. Rheumatology outcomes: the patient's perspective. A multicentre focus group interview study of Swedish rheumatoid arthritis patients. Rheumatology. 2005;44:105–110
  21. Conrad S, Garrett L, Cooksley W, et al. Living with chronic Hepatitis C means ‘you just haven't got a normal life any more’. Chronic Illness. 2006;2:121–131
  22. Wetherell MA, Byrne-Davis L, Dieppe P, et al. Effects of emotional disclosure on psychological and physiological outcomes in patients with rheumatoid arthritis: an exploratory home-based study. Journal of Health Psychology. 2005 Mar;10(2):277–285
  23. Haugli L, Strand E, Finset A. How do patients with rheumatic disease experience their relationship with their doctors? A qualitative study of experiences of stress and support in the doctor–patient relationship. Patient Education and Counselling. 2004 Feb;52(2):169–174
  24. Plach SK, Stevens PE, Moss VA. Corporeality: women's experiences of a body with rheumatoid arthritis. Clinical Nursing Research. 2004 May;13(2):137–155
  25. Persson L, Berglund K, Sahlberg D. Psychological factors in chronic rheumatic disease – a review. The case of rheumatoid arthritis, current research and some problems. Scandinavian Journal of Rheumatology. 1999;28(3):137–144
  26. Melanson P, Downe-Wamboldt B. Confronting life with rheumatoid arthritis. Journal of Advanced Nursing. 2003;42(2):125–133
  27. Lempp H, Scott D, Kingsley G. The personal impact of Rheumatoid Arthritis on patients' identity: a qualitative study. Chronic Illness. 2006;2:109–120
  28. Lempp H, Scott D, Kingsley G. Patients' views on the quality of health care for rheumatoid arthritis. Rheumatology (oxford). 2006;45(12):1522–1528
  29. Simpson C, Franks C, Morrison C, Lempp H. The patient's journey: rheumatoid arthritis. British Medical Journal. 2005;331:887–889
  30. Lempp H, Scott D, Kingsley G. Views and goals of doctors and nurses in their consultations with patients who live with rheumatoid arthritis. Medical Sociology Group Annual Conference Programme. 2006;95:
  31. Seale C, Chaplin R, Lelliot P, Quirk A. Sharing decisions in consultations involving anti-psychotic medication: a qualitative study of psychiatrists' experiences. Social Science and Medicine. 2006;62:2861–2873
  32. Malterud K. Qualitative research: standards, challenges, and guidelines. The Lancet. 2001;358:483–488
  33. Black N. Why we need observational studies to evaluate the effectiveness of health care. British Medical Journal. 1996;312:1215–1218
  34. Malterud K. The art and science of clinical knowledge: evidence beyond measures and numbers. The Lancet. 2001;358:397–400
  35. Cribb A, Bignold S. Towards the reflexive medical school: the hidden curriculum and medical research. Studies in Higher Education. 1999;24(2):195–209
  36. Lazar D. Selected issues in the philosophy of social science. In:  Seale C editors. Researching Society and Culture. London: Sage Publications; 1998;p. 7–22
  37. In:  Stewart M,  Belle Brown J,  Freeman TR editor. Patient-centred Medicine. Transforming the clinical method. second ed.. Oxford: Radcliffe Medical Press; 2003;
  38. Denzin N, Lincoln Y. Handbook of qualitative research. London: Sage Publications; 2000;
  39. Silverman D. Qualitative Research. Theory, Method and Practice. London: Sage Publications; 1997;
  40. Briggs C. Learning how to ask: a socio-linguistic appraisal of the role of the interviewer in social science research. Cambridge: Cambridge University Press; 1986;
  41. Seale C. Researching society and culture. London: Sage Publications; 1998;
  42. Britten N. Qualitative interviews in medical research. British Medical Journal. 1995;311:251–253
  43. Lindblad A, Hartzema A, Jansson L, Feltelius N. Patients' views of priority setting for new medicines. A qualitative study of patients with rheumatoid arthritis. Scandinavian Journal of Rheumatology. 2002;31:324–329
  44. Donovan J, Blake DR. Qualitative study of interpretation of reassurance among patients attending rheumatology clinics: ‘just a touch of arthritis, doctor?’. British Medical Journal. 2000;320:541–544
  45. Soederlund A, Skoge A, Malterud K. ‘I could not lift my arm holding the fork.’: living with chronic fatigue syndrome. Scandinavian Journal of Primary Health Care. 2000;18:165–169
  46. Marshall NJ, Wilson G, Lapworth K, Kay LJ. Patients' perceptions of treatment with anti-TNF therapy for rheumatoid arthritis: a qualitative study. Rheumatology. 2004;43:1034–1038
  47. Carr A, Hewlett S, Hughes R, et al. Rheumatology outcomes: the patient perspective. The Journal of Rheumatology. 2003;30(4):880–883
  48. Sinclair S. Making Doctors. An Institutional Apprenticeship. Oxford: Berg; 1997;
  49. Hafferty F. Into the Valley: death and socialisation of medical students. London and New Haven: Yale University Press; 1991;
  50. Pope C. Conducting ethnography in medical settings. Medical Education. 2005;39:1180–1187
  51. Pope C, Smith A, Goodwin D, Mort M. Passing on tacit knowledge in anaesthesia: a qualitative study. Medical Education. 2003;37:650–655
  52. Emerson R, Fretz RSL. Writing ethnographic fieldnotes. Chicago: University of Chicago Press; 1995;
  53. Malterud K, Baerheim A. Peeing barbed wire:symptom experiences in women with lower urinary tract infection. Scandinavian Journal of Primary Health Care. 1999;17:49–51
  54. Atkinson P, Coffey A. Revisiting the relationship between participant observation and interviewing. In:  Gubrium J,  Holstein J editor. Handbook of Interview Research. Content and Method. London: Sage Publications; 2002;p. 801–814
  55. Mason J. Qualitative Researching. London: Sage Publications; 1996;
  56. Seale C. Using computers to analyse qualitative data. In:  Silverman D editors. Doing Qualitative Research: A Practical Handbook. London: Sage Publications; 1999;p. 154–172
  57. Strauss A, Corbin J. Basics of qualitative research: grounded theory procedures and techniques. Newbury Park, CA: Sage; 1990;
  58. Pope C, Ziebland S, Mays N. Analysing qualitative data. British Medical Journal. 2000;320:114–116
  59. Potter J. Discourse analysis as a way of analysing naturally occurring talk. In:  Silverman D editors. Qualitative Research: Theory, Method and Practice. London: Sage Publications; 1997;p. 144–160
  60. Potter J, Hepburn A. Discursive psychology as a qualitative approach for analysing interaction in medical settings. Medical Education. 2005;39:338–344
  61. Maynard D, Heritage J. Conversation analysis, doctor–patient interaction and medical communication. Medical Education. 2005;39:428–435
  62. Bleakley A. Stories as data, data as stories: making sense of narrative inquiry in clinical situations. Medical Education. 2005;39:534–540
  63. Seale C. Accounting for contradictions. The quality of qualitative research. London: Sage Publications; 1999;73–86
  64. Seale C. Using numbers. The quality of qualitative research. London: Sage Publications; 1999;119–139
  65. Bowling A. Research methods in health. Investigating health and health services. Buckingham: Open University Press; 1997;135–138
  66. Bryman A. Quantity and Quality in Social Research. London: Routledge; 1988;
  67. Whyte J. Traumatic brain injury rehabilitation: are there alternatives to randomised clinical trials?. Archives of Physical Medicine and Rehabilitation. 2002;83(9):1320–1322
  68. Turner-Stokes L. The national service framework for long term conditions: a novel approach for a ‘new style’ NSF. Journal of Neurology, Neurosurgery and Psychiatry. 2005;76:901–902
  69. Newman M, Thompson C. Helping practitioners understand the contribution of qualitative research to evidence-based practice. Evidence Based Nursing. 2006;9:4–7
  70. Chamberlin J. User/consumer involvement in mental health service delivery. Epidemiologica e Psichiatria Sociale. 2005;14(1):10–14
  71. Berkanovic E, Hurwicz M, Lachenbruch P. Concordant and discrepant views of patients' physical functioning. Arthritis Care Research. 1995;8:94–101
  72. Suarez-Almazor ME, Conner-Spady B, Kendall CJ, et al. Lack of congruence in the ratings of patients' health status by patients and their physicians. Medical Decision Making. 2001;21:113–121
  73. Pimm TJ, Weinman J. Applying Leventhal's self regulation model to adaptation and intervention in rheumatic disease. Clinical Psychology and Psychotherapy. 1998;5:62–75
  74. Thornicroft G, Slade M. Comparing needs assessment by staff and by service users: paternalism or partnership in mental health?. Epidemiologica e Psichiatria Sociale. 2002;11:186–191
  75. Sackett DL, Rosenberg WM, Gray JA, et al. Evidence based medicine: what it is and what it isn't. British Medical Journal. 1996;312:71–72
  76. Arthritis and Musculoskeletal Alliance . Standards of Care for people with Inflammatory Arthritis. London: Arthritis and Musculoskeletal Alliance; 2004;
  77. Thomas J, Harden A, Oakley A, et al. Integrating qualitative research with trials in systematic reviews. British Medical Journal. 2004;328:1010–1012
  78. Moulding NT, Silagy CA, Weller DP. A framework for effective management of change in clinical practice: dissemination and implementation of clinical practice guidelines. Quality in Health Care. 1999 Sep;8(3):177–183
  79. Morgan D. Practical strategies for combining qualitative and quantitative methods: application for health research. Qualitative Health Research. 1998;8(3):362–376
  80. Barlow JH, Turner AP, Wright CC. A randomised controlled study of the Arthritis Self-Management Programme in the UK. Health Education Research. 2000;15(6):665–680
  81. Department of Health . The Expert Patient. A New Approach to Chronic Disease Management for the 21st Century. London: Department of Health; 2001;
  82. Department of Health . The National Service Framework for long-term conditions. Leeds: Department of Health; 2005;Report No.: Gateway Reference 4377
  83. Department of Health . Supporting People With Long Terms Conditions to Self Care. A Guide To Developing Local Strategies and Good Practice. London: Department of Health; 2006;Report No.: Gateway 5411
  84. Levenstein JH, McCracken E, McWhinney I, et al. The patient-centred clinical method: a model for the doctor-patient interaction in family medicine. Family Practice. 1986;3:24–30
  85. Arthur V, Clifford C. Rheumatology: the expectations and preferences of patients for their follow-up monitoring care: a qualitative study to determine the dimensions of patient satisfaction. Journal of Clinical Nursing. 2004;13:234–242
  86. Mann C, Dieppe P. Different patterns of illness-related interaction in couples coping with rheumatoid arthritis. Arthritis and Rheumatism. 2006;55(2):279–286
  87. Ryan S, Hassel A, Dawes P, Kendall S. Control perceptions in patients with rheumatoid arthritis: the impact of the medical consultation. Rheumatology. 2003;42:135–140
  88. Woodhead G, Donovan J, Dieppe P. Outcomes of total knee replacement: a qualitative study. Rheumatology (Oxford). 2005;44(8):1032–1037
  89. Greenwood MC, Hakim AJ, Doyle DV. A simple extension to the Rheumatoid Arthritis Quality of Life questionnaire (RAQol) to explore individual patient concerns and monitor group outcome in clinical practice. Rheumatology. 2006;45:61–65
  90. Tammaru M, Strompl J, Maimets K, Hanson E. The value of the qualitative method for adaptation of a disease-specific quality of life assessment instrument: the case of the Rheumatoid Arthritis Quality of Life Scale (RAQoL) in Estonia. Health and Quality of Life Outcomes. 2004 Dec 4;2(1):69
  91. Barry CA, Bradley CP, Britten N, et al. Patients' unvoiced agendas in general practice consultations: qualitative study. British Medical Journal. 2000;320:1246–1250
  92. Stevenson FA, Barry CA, Britten N, et al. Doctor–patient communication about drugs: the evidence for shared decision making. Social Science and Medicine. 2000;50:829–840
  93. Faulkner A. ABC of palliative care: communication with patients, families and other professionals. British Medical Journal. 1998;316:130–132
  94. Dickens C, McGowan L, Clark-Carter D, Creed F. Depression in Rheumatoid Arthritis: a systematic review of the literature with meta-analysis. Psychosomatic Medicine. 2002;64(1):52–60
  95. Emery P. Treatment of rheumatoid arthritis. British Medical Journal. 2006;332:152–155
  96. Hill J. Patient satisfaction in a nurse-led rheumatology clinic. Journal of Advanced Nursing. 1997;25:347–354
  97. Hedin P, McKenna S, Meads D. The Rheumatoid Arthritis Quality of Life (RAQoL) for Sweden: adaptation and validation. Scandinavian Journal of Rheumatology. 2006;35(2):117–123
  98. Cornwell J. Hard earned lives: accounts of health and illness from East London. London: Tavistock; 1984;
  99. Stanley L, Wise S. Breaking Out Again. Feminist Ontology and Epistemology. London: Routledge; 1993;
  100. In:  Anderson R,  Bury M editor. Living with Chronic Illness. The Experiences of Patients and their Families. London: Unwin Hyman; 1988;

PII: S1521-6942(07)00057-5

doi: 10.1016/j.berh.2007.05.002

Best Practice & Research Clinical Rheumatology
Volume 21, Issue 5 , Pages 857-869 , October 2007