Best Practice & Research Clinical Rheumatology
Volume 23, Issue 5 , Pages 643-653 , October 2009

Improving the management of paediatric rheumatic diseases globally

  • Gail Faller, MB BCh, MMed, FCPaed, DCH, Paediatric Rheumatologist

      Affiliations

    • Chris Hani Baragwanath Hospital, Johannesburg, South Africa
  • ,
  • Roger C. Allen, MB BS, FRACP, Paediatric Rheumatologist

      Affiliations

    • Royal Children's Hospital, Parkville, Melbourne, VIC 3052, Australia
    • Corresponding Author InformationCorresponding author. Tel.: +61393477114; Fax: +61393473330.

References 

  1. Ozen S, Ruperto N, Dillon MJ, et al. EULAR/PReS endorsed consensus criteria for the classification of childhood vasculitides. Ann Rheum Dis. 2006;65:936–941
  2. Ruperto N, Ravelli A, Cuttica R, et al. The Pediatric Rheumatology International Trials Organization criteria for the evaluation of response to therapy in juvenile systemic lupus erythematosus. Arthritis Rheum. 2005;52:2854–2864
  3. Brown VE, Pilkington CA, Feldman BM, Davidson JE. An international consensus survey of the diagnostic criteria for juvenile dermatomyositis (JDM). Rheumatology (Oxford). 2006;45:990–993
  4. Petty RE, Southwood TR, Manners P, et al. International League of Associations for Rheumatology classification of juvenile idiopathic arthritis: second revision, Edmonton, 2001. J Rheumatol. 2004;31:390–392
  5. Ravelli A, Felici E, Magni-Manzoni S, et al. Patients with antinuclear antibody positive juvenile arthritis constitute a homogeneous subgroup irrespective of the course of joint disease. Arthritis Rheum. 2005;52:826–832
  6. Duffy CM, Colbert RA, Laxer RM, et al. Nomenclature and classification in chronic childhood arthritis: a time for a change?. Arthritis Rheum. 2005;52:382–385
  7. Prahalad S, Glass DN. A comprehensive review of the genetics of juvenile idiopathic arthritis. Pediatr Rheumatol Online J. 2008;6:11
  8. Hinks A, Barton A, Shepherd N, et al. Identification of a novel susceptibility locus for juvenile idiopathic arthritis by genome-wide association analysis. Arthritis Rheum. 2009;60:258–263
  9. Dodani S, Kazmi KA, Laporte RE, Wilson JP. Effectiveness of research training workshop taught by traditional and video-teleconference methods in a developing country. Glob Public Health. 2009;4:82–93
  10. Jandial S, Myers A, Wise E, Foster HE. Doctors likely to encounter children with musculoskeletal complaints have low confidence in their clinical skills. J Pediatr. 2009;154:267–271
  11. Myers A, McDonagh JE, Gupta K, et al. More ‘cries from the joints’: assessment of the musculoskeletal system is poorly documented in routine paediatric clerking. Rheumatology (Oxford). 2004;43:1045–1049
  12. Ehrmann-Feldman D, Bernatsky S, Abrahamowicz M, et al. Consultation with an arthritis specialist for children with suspected juvenile rheumatoid arthritis: a population based study. Arch Pediatr Adolesc Med. 2008;162:538–543
  13. Adib N, Hyrich K, Thornton J, et al. Association between duration of symptoms and severity of disease at first presentation to paediatric rheumatology: results from the Childhood Arthritis Prospective Study. Rheumatology (Oxford). 2008;47:991–995
  14. Manners P. Delay in diagnosing juvenile arthritis. Med J Aust. 1999;171:367–369
  15. Woolf AD, Walsh NE, Akesson K. Global core recommendations for a musculoskeletal undergraduate curriculum. Ann Rheum Dis. 2004;63:517–524
  16. Foster HE, Kay LJ, Friswell M. Musculoskeletal screening examination (pGALS) for school-age children based on the adult GALS screen. Arthritis Rheum. 2006;55:709–716
  17. Ravelli A, Martini A. Juvenile idiopathic arthritis. Lancet. 2007;369:767–778
  18. Ruperto N, Ravelli A, Pistorio A, et al. Paediatric Rheumatology International Trials Organization. Cross-cultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) in 32 countries. Review of the general methodology. Clin Exp Rheumatol. 2001;19(4 Suppl. 23):S1–S9
  19. O'Dell JR, Haire C, Erikson N, et al. Efficacy of triple DMARD therapy in patients with rheumatoid arthritis with suboptimal response to methotrexate. J Rheumatol Suppl. 1996;44:72–74
  20. See Y, Koh ET, Boey ML. One hundred and seventy cases of childhood-onset rheumatological disease in Singapore. Ann Acad Med Singap. 1998;27:496–502
  21. Huang JL, Yao TC, See LC. Prevalence of pediatric systemic lupus erythematosus in a Chinese population: a nationwide prospective population-based study in Taiwan. Clin Exp Rheumatol. 2004;22:776–780
  22. Bahabri S, Al-Sewairi W, Al-Mazyad A, et al. Juvenile rheumatoid arthritis: the Saudi experience. Ann Saudi Med. 1997;17:413–418
  23. Chandrasekran AN, Rajendran CP, Madhavan R. Juvenile rheumatoid arthritis – Madras experience. Indian J Pediatr. 1996;63:501–510
  24. Arguedas O, Fasth A, Andersson-Gare B, Porras O. Juvenile chronic arthritis in urban San Jose, Costa Rica: a 2 year prospective study. J Rheumatol. 1998;25:1844–1850
  25. Saurenmann RK, Rose JB, Tyrrell P, et al. Epidemiology of juvenile idiopathic arthritis in a multiethnic cohort - Ethnicity as a risk factor. Arthritis Rheum. 2007;56:1974–1984
  26. Ozen S, Aktay N, Lainka E, et al. Disease severity in children and adolescents with familial Mediterranean fever: a comparative study to explore environmental effects on a monogenic disease. Ann Rheum Dis. 2009;68:246–248
  27. Brunner HI, Taylor J, Britto MT, et al. Differences in disease outcomes between Medicaid and privately insured children: possible health disparities in juvenile rheumatoid arthritis. Arthritis Rheum. 2006;55:378–384
  28. Mullick MS, Nahar JS, Haq SA. Psychiatric morbidity, stressors, impact, and burden in juvenile idiopathic arthritis. J Health Popul Nutr. 2005;23:142–149
  29. Ogden CL, Carroll MD, Curtin LR, et al. Prevalence of overweight and obesity in the United States, 1999–2004. J Am Med Assoc. 2006;295:1549–1555
  30. Wang LY, Chyen D, Lee S, Lowry R. The association between body mass index in adolescence and obesity in adulthood. J Adolesc Health. 2008;42:512–518
  31. March LM, Bagga H. Epidemiology of osteoarthritis in Australia. Med J Aust. 2004;180(5 Suppl.):s6–s10
  32. Manoff EM, Banffy MB, Winell JJ. Relationship between Body Mass Index and slipped capital femoral epiphysis. J Pediatr Orthop. 2005;25:744–746
  33. Sabharwal S, Lee J, Zhao C. Multiplanar deformity analysis of untreated Blount disease. J Pediatr Orthop. 2007;27:260–265
  34. Taylor ED, Theim KR, Mirch MC, et al. Orthopedic complications of overweight in children and adolescents. Pediatrics. 2006;117:2167–2174
  35. UNICEF: state of the world's children: children and AIDS: third Stocktaking report, 2008.
  36. Chinniah K, Mody GM, Bhimma R, Adhikari M. Arthritis in association with human immunodeficiency virus infection in Black African children: causal or coincidental?. Rheumatology. 2005;44:915–920
  37. Zaborowski AG, Parbhoo D, Chinniah K, Visser L. Uveitis in children with human immunodeficiency virus associated arthritis. J AAPOS. 2008;12:608–610
  38. Boulware DR, Callens S, Pahwa S. Pediatric HIV immune reconstitution syndrome. Curr Opin HIV AIDS. 2008;3:461–467
  39. Martinez-Rojano H, Hernandez EJ, de Guevara GL, Gorbea-Robles MC. Rheumatologic manifestations of paediatric HIV infection. AIDS Patient Care STDs. 2001;15:519–526
  40. Bunupuradah T, Puthanakit T, Pancharoen C, et al. Henoch-Schonlein purpura and thrombocytopenia after planned antiretroviral treatment interruption in a Thai girl with HIV infection. Int J Infect Dis. 2009;13:e31–e33

PII: S1521-6942(09)00079-5

doi: 10.1016/j.berh.2009.07.006

Best Practice & Research Clinical Rheumatology
Volume 23, Issue 5 , Pages 643-653 , October 2009